Monday, February 22, 2016



  1. Going thru some crappy stuff? Me too. In bed since Xmas. Prior was doing great. You have inspired me before. I know ya got probs, but these to shall pass. U of M has Dr Parry, GBS world wide expert. As for e, I've come as far as I'm going to go. I'll always have this wheelchair. At least it's electric.

    1. I am, yes. My legs have decided to be angry. They are very tight and spastic and painful. I'm glad to hear there is a light at the end of this long tunnel with a good doctor there. I may always have the chair too, but I just want the pain and the tightness to stop. I can't straighten my legs at all anymore. You can email me at